LGBTQ+ Cancer Support
Navigating a cancer diagnosis can be a challenging journey for anyone, but for individuals in the LGBTQ+ community, it may come with unique obstacles and struggles. Discrimination and other barriers to treatment can take a toll on LGBTQ+ cancer patients, both physically and mentally. Learn about the importance of inclusive health care and available support resources.
About Cancer and LGBTQ+ Patients
Cancer not only affects a person’s physical well-being but also their mental and emotional health. LGBTQ+ individuals with cancer may experience added stressors, like the fear of discrimination, isolation, and a lack of understanding from health care professionals.
Studies have shown that LGBTQ+ cancer patients are more likely to encounter discrimination and microaggressions from medical professionals.
This type of behavior can worsen feelings of anxiety and distress and lead to delays in diagnosis and treatment.
“People have been turned away from care, made to feel not welcome and been discriminated against — either overtly or through microaggressions.”
– Dr. Matty Triplette, Fred Hutchinson Cancer Center
Missing options on medical forms and misgendering may also make cancer patients who identify as transgender or non-binary feel like they’re not being seen or heard.
The intersectionality of being both LGBTQ+ and a cancer patient can result in financial hardships. Due to systemic inequalities, these individuals are more likely to experience poverty and lack access to adequate health care coverage, making the burden of cancer treatment even heavier for them.
Understanding the Unique Challenges Faced by LGBTQ+ Individuals With Cancer
Despite significant progress in LGBTQ+ rights, discrimination and stigmatization persist, even within health care systems. Data from the American Cancer Society shows that LGBTQ+ cancer patients are more likely to face health care disparities.
These inequalities include:
- Delays in diagnosis
- Inadequate screenings
- Limited access to care
- Substandard treatment options
Studies have also found that LGBTQ+ cancer patients are more likely to face challenges in building strong social support networks due to rejection from family members, friends, or communities based on their sexual orientation or gender identity. These issues can lead to increased stress and feelings of isolation during their cancer journey.
LGBTQ+ individuals with cancer may encounter additional hurdles when seeking appropriate and inclusive medical care. Health care providers may lack training in issues specific to those in the community, leading to a lack of understanding and proper care.
The Human Rights Campaign’s Healthcare Equality Index evaluates the policies and practices of providers to see if they promote equity and inclusion for LGBTQ+ individuals and their families. You can check out HRC’s map to see how the facilities in your state rate.
Research shows that LGBTQ+ individuals with cancer are at a higher risk of experiencing mental health challenges, like depression and anxiety, in comparison to their heterosexual and cisgender counterparts. In some cases, those affected may need specialized support.
Resources for LGBTQ+ Cancer Patients
Inclusive cancer support organizations offer valuable information, guidance, and emotional support to LGBTQ+ individuals dealing with a cancer diagnosis.
LGBTQ+ individuals can find support through online communities, forums, and social media groups. These platforms provide a safe space for sharing experiences, offering advice, and gathering support. They also allow LGBTQ+ individuals to connect with others who understand their journey.
While patients in the community may benefit from general cancer support groups, they may find specialized support groups helpful and comfortable. These groups often focus on addressing the intersection of LGBTQ+ identity and cancer diagnosis, providing a space for individuals to explore their feelings, fears, and hopes in a supportive environment.
LGBTQ+ cancer support groups are available through:
- CancerCare
- National LGBT Cancer Network
- Zero Prostate Cancer
- Facebook and other social media platforms
Tip: Your local LGBTQ+ community center or cancer care team may be able to recommend support programs in your area sensitive to your needs.
Holistic Support
Holistic approaches to cancer care for LGBTQ+ individuals are gaining recognition, with some health care facilities offering complementary therapies like acupuncture, massages, and mindfulness practices.
These integrative services aim to support the overall well-being of patients, addressing not only the physical aspects of cancer but also the emotional and mental toll it can take.
The Importance of Inclusive Health Care for LGBTQ+ Cancer Patients
Inclusive health care is essential for LGBTQ cancer support. Health care providers need to be knowledgeable about LGBTQ+ health disparities and sensitive to the specific needs and concerns of those in the community.
Medical professionals must create a safe and judgment-free environment, fostering trust and open communication with LGBTQ+ patients. This enables patients to receive the care they need without fear of discrimination or marginalization.
While there’s a lack of research on the subject, an Australian group called Out With Cancer surveyed 430 LGBTQ+ patients with cancer and reported their findings in Frontiers of Oncology.
The survey found that:
- Over 40% of patients reported high or very high distress levels, which was as much as 6 times higher than levels reported in non-LGBTQ+ cancer studies.
- 82% of patients said they had experienced discrimination in their life in general.
- 33% said they had experienced discrimination during their cancer care.
- Patients who identified as transgender or gender diverse reported higher rates of distress.
Due to the unique challenges faced by those in the community, health care providers should be equipped to connect patients with resources, like support groups, financial assistance programs, and local LGBTQ+ community organizations.
Research shows that LGBTQ+ individuals are at a higher risk for certain types of cancers from risk factors like smoking, alcohol consumption, and human papillomavirus (HPV) infection.
Health care providers should take these risk factors into account when developing personalized cancer prevention and treatment plans for their LGBTQ+ patients.
A Brighter Future for LGBTQ+ Cancer Patients
While cancer is a difficult journey for all navigating the physical and emotional aspects of the disease, it is important to acknowledge and address the unique challenges and obstacles faced by LGBTQ+ individuals.
By supporting their mental health and emotional well-being, improving access to inclusive health care, and fostering safe spaces through LGBTQ+ friendly cancer support groups, we can improve the overall quality of life and care for these patients.
Fact-Checked and Legally Reviewed by: Rae Theodore
Rae Theodore is a writer and editor with more than 30 years of experience in legal publishing. She earned a bachelor’s degree in English from Pennsylvania State University.
- Fred Hutch Cancer Center. (2023, August 3). “Cancer and the LGBTQ+ community.” Retrieved June 27, 2024, from https://www.fredhutch.org/en/news/center-news/2023/08/cancer-and-the-lgbtq-community.html
- Human Rights Campaign. “Healthcare Equality Index 2024.: Retrieved June 27, 2024, from https://www.hrc.org/resources/healthcare-equality-index
- Western Sydney University. “Out with Cancer.” Retrieved June 27, 2024, from https://www.westernsydney.edu.au/thri/research/health,_culture_and_society/out_with_cancer